I’m just wondering if anyone can give me any advice on Peyronies Disease or any input on this….
So 3 years ago I met my current Boyfriend. When we first met he was very honest and explained he had problems keeping an erection during sex/oral and that he had been suffering with it for many years. He is in his mid 30s now.
Over time the erection started to happen less frequently. He made an appointment to see his gp who fobbed him off with a few sildenafil and told him it was more likely due to stress. My partner has never had depression but in the past has had drug addiction problems which we both kind off put it down to maybe being the cause of the problem. Instead of going back to the doctors my partner decided to buy Sildenafil from a dealer(I wouldn’t recommend) and for the past few years they have been working fine about 85/90% of the time.
However now for the past few months they aren’t working and he simply can’t keep an erection to have sex. It starts of hard but then slowly looses it with in minutes.
A few times in our relationship I have mentioned that there is a curve/bend to his penis which I know can be normal but this is almost like a C shape when hard. I have mentioned to him that I think it’s something maybe to do with why he can’t keep an erection. Then I ended up googling and found Peyronies Disease which sounds like what he has. Even when taking medication to get an erection the penis is never fully hard and I’ve never seen his penis stand up even in mornings.
My boyfriend as made another call to the doctor and I’ve told him to really push his concerns and get him to actually examine you this time and don’t let him fob you off. My boyfriend is now just looking at other types of viagra online to see if that will help him as he doesn’t want the doctors to drag it all out and he can’t be bothered waiting. It’s really stressing me out now as he thinks pills online or from a person are just an easy fix. I do understand his frustration but it’s costing us money we don’t have and we’re not getting to bottom why his penis is so curved around.
His doctor’s appointment is in 2 weeks and I don’t think he will go.
Going to echo not buying online a big nono, you could end up with something strange. Years ago a long time ago I was buying some health tablets online, let’s just say they were not what they were supposed to be and made me very ill.
Hi @Deanna32
If you have read the thread that @JoCat referred too, You will have seen that I suffer no ill effects from the Peyronie’s itself, apart from the slight bend upwards. I have full sensation and stay hard and erect until orgasm, which then subsides after a couple of minutes (which I’m sure is perfectly normal)
I’m no doctor, but it does sound like your boyfriend is suffering from erectile dysfunction. It could just be that his anxiety over the bend is not helping. When I first saw the GP and then the urologist who diagnosed Peyronie’s, I was really upset because (like most men) I was more than happy with my “manhood”…I was not “hung like a donkey” but happy to be nearly 6".
I have lost about 1/2" on overall length, but Mrs LC encouraged me by saying (as in my other thread) “We caused it, so don’t worry…I still love him!”
Perhaps you can have a loving chat with your B/F and keep reassuring him that the curve does not bother you, you still get pleasure etc, etc. It worked for me.
I know there are many reasons for ED, but just take one step at a time.
I hope that helps x
Yes I read your thread. The curve as never been a problem for me or him.
When Peyronie’s disease gets severe it can cause erection problems which he has had now for around 7 years. It could just be ED but it’s like the lump/bend is restricting blood flow.
Ah yes @Deanna32, I understand now.
My curve is about 15⁰ upward, so is nowhere as severe as the images I have seen online.
I think the maximum is something like 50⁰ or more!
From what you have said, the scar tissue could be causing a problem. A referral to the urologist will confirm if that is the case.
Tell your / his GP that a “friend” has the same and you want an appointment with the urologist x
It does sadden me how many doctor surgeries have adopted the new fob off system to its patients and don’t treat people properly like they used to before covid…
I’ve actually this week for the first time in my family’s history moved to a different doctors surgery along with my parents as we’d finally had enough of their negligence and I’ve heard many more are doing the same in the area…
But anyway Peyronie disease is actually more common in men than people think and it varies to all extremes, but one cause can actually be from too much excessive masturbation which causes a thickening of the skin on the penis shaft that creates the curvature. Another cause if he’s had it from adolescence is his skin didn’t stretch with the rest of his body in that area.
Depending on the severity of it, doctors can treat it with simple steroid creams or type of injection to thin the skin and make it more stretchy again, or in really simple cases it literally is just some exercises required with maybe a willy brace type thing to help.
On the more extreme, you’d be looking at possible surgery to remove and detach the restricted area.
Has been a while since I’ve looked up into this so they might have new treatments now.
Hi @Deanna32 I think the term is used for a few different manifestations of sub-types with additional symptoms. this topic describes further symptoms and is more from the partners perspective. Sorry no tips to resolve it but even though it was written a long time ago it helped me feel less alone. We used to have fantastic sex twice a day but I feel the onset may have been linked strong medication he was prescribed. His penis shrunk a lot and looked and felt different even when flaccid. So it wasn’t just the curve, sex felt totally different for us both. I was interested in trying this. (now out of stock) but the penis owner was not interested in trying it. He no longer has any interest in any sexual activity. I hope you are able to find ways to continue enjoying intimacy and some form of sexual enjoyment, despite these challenges.
Does your man still have a decent libido and appetite for sex? If so, then that is good.
I’ve learned over the years that it’s hard, but you have to be a self advocate in the health system, and it’s tricky to get to the bottom of things.
While you navigate that obstacle course, to try and understand if this is a purely physical thing that can be treated, it’s worth thinking about how much the mental aspect can affect your physiology.
There could be physical and mental stress involved.
They say the biggest sex organ is between the ears, and if I get ‘stuck in my head’ worrying about something - sex is ruined.
It may not be the case but the anxiety could be playing a part (I don’t know - just thoughts)
If so, can you shift the focus for a while and focus more on your pleasure? Is he happy to play with you with toys, fingers, tongues etc?
It may help a little if he is getting really turned on by what’s happening with you and not stressed about his performance.
If not, it’s still fun and a win for you! I get a LOT of sexual pleasure out of pleasing my wife.
Hope you get some good answers and things change for the better soon.
x