@https://www.lovehoney.co.uk/community/members/pansy/ yes my hip can pop out like that too, I find that most of my joints can pop out, it can look really cool but gross at times, my fingers I use to do as a trick as a kid but didn't think too much of it. Physio has said that every joint seems affected, heck even my toes poped out and kinda tied together the other day and made me fall, really sucked.
@https://www.lovehoney.co.uk/community/members/illtakethehighroad/ Yes they checked my gait, and posture which are both really good, but did read how it can cause extra strain ect. I've always had very good posture and walking stride. Glad the strengthening exercises helped you! =)
Hey Mr Peebs, I was assessed by another physio on Monday and was even more hyper mobile than the other day. I have poor vision, even a squint was found only last year but it is thought to not be neurological but the muscles weakening more and more. I have blurred vision without a known reason too, this is on top of my other vision things which were picked up on as a kid, the hospital has said not all are due to my eyes themselves but something else going on in my body. I have extreme fatigue and always have, I have pushed myself in the past but have resulted in me not being able to leave my bed, once was 8 months, even lifting my head can be hard. I have no coordination at all and bad motor skills, this was put down to dyslexia. Joints are hypermopbile, in all, but mobility has gone a bit as I've aged due to injuries, but I can still do things like turn my feet backwards and touch the floor without bending my knees, for example. As a kid my ankles dislocated loads, was a mega pain. I can weight train loads and yet still not gain muscle and strength. I have extreme IBS at times which diet hasn't actually helped, if anything trying things like fodmap has made it worse in the past. I have tachycardia, which I believe is POTs, at first doctors thought stress, but cardiologist has confirmed it's not stress, and ambulances have too, they just don't know why my body is doing it, it often happens when sitting, lying, or standing for too long, I tried a reduced salt diet as over the years I've carved salt and it actually made me have tachycardia loads more regularly and for longer times and higher heart rates (often my tachycardia ranges from 140 -200), I can't take beta blockers as I have a ntaurally low heart rate which can go down to 50.I get raynauds too, which may be due to something else, last physio said sjorens as I have extremely bad dry eye but I know some with EDS have it too. I have a lot of joint pain.
I do pilates daily, weights regularly but can't go too high on some due to DDD and bulges. I have an elliptical trainer which I use twice a day most days at a good resistance level. I did use a weighted cable machine for a bit but one physio said stop and to focus on stretching more as at the time my arm wasn't that mobile when I tried to move it due to pain, but when GP moved it it had full range if not more, just the pain was getting to me.
What you said regarding swimming sounds right, backstroke or my legs made my hip a lot worse plus damaged my lower back more,front crawl with my arms just made my arms pop out more.
I have been using some support things for bits like my hands, particularly with raynauds, but have found they do not help with joint pain, but I have found kinsology tape to be good, but extremely expensive.
I know it may sound odd but I was getting extremely bad round ligament pain for about a month when I thought it was only meant to happen during pregnancy. I have painful illac crests too.
But twice a day I use my elliptical, I do pilates, then I have a series of arm exercises I do, squats here and there, one legged exercises etc. Which seem to be soe of the exercises I'm getting told to do by the physios, although I am doing them. I use a weights bench a few times a weeks, and do other forms of light weights throughout the week. Sometimes I do a bit of tia chi. I took a few months off last year and things didn't get better and if anything things got worse. I've lost weight and gained weight here and there and doesn't seem to affect pain levels. I do some restistance band work too.
I'd be ok with you contacting me if they allow, but I'm really not sure how you can help, it just seems like I'm doing a lot of what the physio's and doctors have told me and many of it I've been doing for ages anyway, such as side lying clam, bridging, etc. It's crazy. I have two siblings whose joints pop out loads too, and have tachycardia, and other issues as well (only found out recently they're going through the same), it's just strange that multiple people would have it, although it seems to be affecting my body worse, but maybe because I'm a woman.