OMG

OMG - a momentous day has arrived.

It was less than 6 months ago that I was making preparations for my son to go to the educational facility for children with special needs, and today - he's starting MAINSTREAM pre-school with a care plan.

This is huge for us, and I'm in tears thinking about it ...

I'm so happy

wow, thats excellent HB, very pleased for you!

Excellent news, I hope he has a great day xx

Brilliant Hells! I hope he has a lovely day and settles in well. Great news. SG x

Good news, hope it goes well

That's absolutely brilliant! Congratulations and well done <3 I hope everything goes well today,

Congratulations! This is fantastic news :)

I hope everything goes well. <3

Great news! Hope all goes well

That is fantastic, hope all goes well.

Great news :)

Hope it all goes well

That's great news lovely! I'm sure he'll love it, especially if he has all the support he needs.

Bet you're so proud.

Adx

Thats brilliant news huny Im sure he will be well cared for there too. hugs*

Thats fab, hope he has a fantastic day x

Well - he went to a specialist unit once a week for a year (like a nursery) with children aged between 2-3 (he was 2 when he started) for children with special needs - everything from speech and language (why he was referred - that and occupational therapy needs) to severe cerebal palsy and autism and everything in between. There were 8 children in Kerr's class (with a teacher, a play worker and 3 volunteers) so not quite 1-1, but a high ratio of care. And after about 4 months (when they did his first review) they finally recorded what I'd been telling them - that he's all there mentally - he just has funciton difficulty.

So with some equipment from the Occupational Therapist, with a care plan from our Paediatrician who's given lots of information about his illnesses, and with help from the Health Visitor to create the care plan with the Paediatrician - we're here. We're at mainstream.

A momentous day

And yes - I know you'll ask so here goes

He has cystic fibrosis - and it's not one of the common strains - they don't know the exact strain yet which is making treatment hard. Once we know what strain he has we can give him an enzyme to make his pancreas work properly. He doesn't digest food properly which means his development has been slow and he's very small for age (he's nearly 4 but he's still in 12 month clothes). When he gets poorly (with his lungs) he gets very sick, very quickly. He is very mucussy - you can hear it in him, you can feel it in his chest, and he passes a lot of mucus in his poop - he has never made a "formed " poop - his poops are all very wet, sticky and mucussy (a bit like newborn poop). Most people would probably think he's got diorreah -he doesn't.

He needs a special high calorie milk, if he doesn't have 600cals via that milk every day - he drops off the weight chart.

He eats like a horse, but he has some alergies - such as wholemeal flour (don't ask), eggs (call an ambulance) and peanuts (same).

We have been through all the dietry things they can throw at us - but regardless of his diet - his poop remains the same.

On top of this he is very atopic - he breaks out with anything. He has wet wraps at night and dry wraps during the day and requires frequent emoliation and various inhalers etc.

So he keeps me busy - very busy!

Great news! I am pleased for you and your son. He should be proud.

we are - i've shed quite a few tears today!

Wanted to say that is lovely news on a grey and drab monday

But also wanted to congratulate you, being a parent is sooooo hard sometimes and you have additional stuff to deal with so you should be proud of yourself.

xGGx

Aw bless, great news for you guys! Hope they can find out more soon so you can make a better future for him. All the best wishes for the future x

Brilliant news!! I can't imagine how happy you must feel!! Congratulations xx