Hey Sammi
Wish I'd seen this earlier... I volunteer with a brain injury charity, running and co-ordinating a support group. We 're a group that range in age from early 20's upwards - think our eldest member is in her 60's. We've often chatted about sex, but never as a full group - usually just a handful of people who have the nerve to ask a question....and it's often directed at me because...
I suffered a sub-arachnoid hemorrhage during sex - one so severe that I stopped breathing and died!! Mr Spider kept me alive resuscitating me several times before the paramedics arrived and took over. I had brain surgery to fix the ruptured artery and was in a coma for about 2 weeks. I joke about it now... how Mr. Spider let the paramedics in wearing nothing but a condom which was still clinging to his very limp penis! But deep down it's still a problem for us both. (as you can no doubt imagine)
Anyway...the bleed and brain surgery did quite a lot of damage to my brain and nervous system. I need a wheelchair to get around (cause my brain and legs don't speak), my legs are spastic, and I can't even turn over or sit up in bed without the monkey bar above my bed. I can't differentiate the sensations of hot and cold, I have no depth perception, my language skills can be very poor - as can my behavior - my response inhabitions are very confused, so I need someone who knows me well to be with me at all times. I have epilepsy too. So - all told, a bit of a mess, innit!
I had 7 years of neuro psychology to help me come to terms with the 'new me' that was born from the brain damage - to learn to like myself again - it was difficult, but I'm back now, after 10 years and almost enjoying life again. Life is still hard - sex is harder still. We are both working on making it less of a problem and more of a journey. It has been fun but is also still frustrating and lots of tears quite often, for both of us - learning to have confidence and enjoy sex again. For him - having a sometimes 'beached whale' to pleasure instead of the slim gymnastically abled girl and for me having a guy who if he's honest - really doesn't find me very desirable. But we love each other - and that love is the key.
We're saving to buy some liberator equipment as pillows really aren't doing the trick much of the time - we have heaps of pillows to prop parts of me up (it must be a hellish turn off for him that I have to use the monkey bar to even pull myself up and onto my side just to give him a blow job!) For 10 year we were virtually none active sexually - probably once every 3 or 4 months...but suddenly my body seems to have woken up sexually and I just can't get enough!
Toy wise I need quite powerful stuff coz of my nerve problem and the opiate drugs I need to keep my body behaving normally. I need toys with longer handles for solo play too, I find wands perfect in size for reaching myself....for smaller toys like one of my favs - lelo sona, I need pillows under my arms for support otherwise I can't stay in a comfortable position long enough to be able to come plus I'm in agony for hours after.
I'm not whinging here btw, or looking for sympathy. I'm writing this in the hope that anyone with a disability can see that there is a way to enjoy love. Sorry, it's so long, too. Feel free to email me, I could maybe, if you still need, get more info for you from members of our group.